Menu Search Account

LegiStorm

Get LegiStorm App Visit Product Demo Website
» Get LegiStorm App
» Get LegiStorm Pro Free Demo

Rare Disease Caucus

Information

Organization's Own Description:

The goals of the Rare Disease Caucus are to bring Congressional attention to the nearly 7,000 known rare diseases that currently have no approved therapies, ensure sufficient funding for research and orphan product development, explore ways to incentivize companies to create new drugs, biologics and humanitarian use devices, and provide an opportunity for Members of Congress, families, and advocacy groups to exchange ideas and policy concerns. Rare and neglected diseases afflict nearly 30 million Americans, approximately half of whom are children.

Subscribers to LegiStorm Pro see the full address information for Rare Disease Caucus. Click here to see more LegiStorm Pro benefits and subscribe, or to your Pro account.

Caucus Membership

Subscribers to LegiStorm Pro see the full caucus membership list of the Rare Disease Caucus. Click here to see more LegiStorm Pro benefits and subscribe, or to your Pro account.